Wednesday, May 1, 2019

What We Want You To Know 2019

The past two years, I've written this post as a part of April and Autism Awareness month.  Here's 2018's version and 2017's version and the post that sparked the idea in 2015.  I didn't write much this year about Autism Awareness month.  I'm not sure why.  I haven't been great about writing this month all together and I've largely ignored Autism Awareness month.  I'm fully aware and I'm not interested in rehashing my ideas about Autism Speaks.  It's all out there and my position hasn't changed.

Yesterday I realized it was the last day of the month and I haven't written anything.  I asked the boys what they'd like you to know. 

"I wish people knew that he, more often than not, does not know what he is saying. What I mean is whatever he says is just the first thing that popped into his head no matter if it’s hurtful or funny or some like that."

This has a lot to do with impulse control as well as lack of social awareness.  B isn't trying to hurt your feelings, he's just not great at filtering.

"I would like people to know that he thinks through and understands things way differently than we do, and sometimes it causes him to have meltdowns or stuff because he doesn’t understand how we think and why it’s different than our way"

B just thinks differently.  Often, he doesn't understand our way of thinking just like we don't understand his way of thinking.

"B is quirky and sometimes he can't control his quirkiness.  But mostly he's awesome."

My main thing lately is please listen to us when we tell you the best way to handle B.  When he's having a hard time STAY QUIET!  When you keep talking or asking him questions or give him choices you're overwhelming him more and more, prolonging whatever the trouble is.  

"Autism is a curse and a blessing. A curse because people don't understand and may mock you. Blessing because I have it."  (excuse me while I bawl)

We are always happy to answer questions about B and autism.  If you have any, post them in the comments!

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